The Fatal Truth About Celiac Disease That You May Not Know

More and more groceries and health food stores stock gluten-free products. That’s good news for people with celiac disease, who for health reasons should not eat wheat with gluten.

Yet paradoxically, most of the people who reach for gluten-free products don’t haveceliac disease and or even a sensitivity to wheat, Peter H.R. Green, MD, director of theCeliac Disease Center at Columbia University, told WebMD. “The market for gluten-free products is exploding. Why exactly we don’t know. Many people may just perceive that a gluten-free diet is healthier.”

In fact, it isn’t. For people with celiac disease, a gluten-free diet is essential. But for others, “unless people are very careful, a gluten-free diet can lack vitamins, minerals, and fiber,” says Green.

Celiac Disease Serious, Often Undetected

Experts estimate that about 1% of Americans have celiac disease. The condition, caused by an abnormal immune response to gluten, can damage the lining of the small intestine. That, in turn, can prevent important nutrients from being absorbed.

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Symptoms of celiac disease include diarrhea, anemia, bone pain, and a severe skin rashcalled dermatitis herpetiformis. But celiac disease often has few or no symptoms. In part for that reason, only about 5% to 10% of cases are diagnosed in the U.S., Green says.

How can you know if you have celiac disease? The only way is to be tested. The first test is typically a blood test that detects antibodies related to an abnormal immune response. If the blood test is positive, a biopsy is performed to confirm inflammation in the lining of the small intestines.

But What If You Don’t Have Celiac Disease?

Some people may be sensitive to gluten but don’t have outright celiac disease. These people may feel better on a diet with less gluten.

So what’s wrong with the rest of us trying a gluten-free diet a try to see how we feel?

For starters, going gluten-free means saying no to many common and nutritious foods. Gluten is a protein found in wheat, barley, and rye. Gluten also shows up in many whole grain foods related to wheat, including bulgur, farro, kamut, spelt, and triticale (a hybrid of wheat and rye). Some celiac disease experts warn patients to steer clear of oats, as well.

13 Truths Stroke Survivors Wish Others Understood

A stroke happens when the blood supply to the brain is interrupted. Everyone who has a stroke is affected differently, and some may experience problems on a certain side of their body (for example, a stroke on the right side of the brain can impact the left side of the body). Others may have difficulty eating, breathing and moving if they experience a stroke at the base of the brain.

And even though the World Stroke Organization reports that 1 in 6 people will have a stroke in their lifetime, the average person knows little about what happens before, during and after a stroke. So the Mighty teamed up with the National Stroke Foundation of Australia and asked stroke survivors what they wish others understood about their experiences.

Here’s what they had to say:

1. “Not knowing the cause of my strokes is something that terrifies me daily. I don’t know if I will have another and if I’ll be alone with my daughter again if I do.” — Rosie Bell

knowing

2. “Your life changes. Your previous life is no longer, and you are now on a different path.” —Karen Kelsey

3. “Some days are better than others. Some days it’s hard to be strong.” —Adam Colbourne

strong

4. “I’d tell people to get your blood pressure checked! Ironically, my mum had a massive pontine stroke on World Stroke Day seven years ago and died 10 days later. I’ve only just turned 40 and have hypertension too; I am on anti-hypertensive medication as a result. I learned from experience. It can happen to anyone! My mum didn’t smoke or drink and she walked every day.”
—Cecelia Cooke

5. “Every day is a struggle mentally and physically… Although it gets better over time, it’s a lifelong rehab!” –Ida Dempsey

rehab

6. “[There’s a] need for rehabilitation after [the] hospital discharge.” —Tracey Roberts

7. “Side effects of stroke [can be] invisible.” —Astrid Pianto

invisib

8. “I’m still fighting to get the word ‘aphasia‘* known in the wider community and it’s hard.” —Wendy Corp

9. “Healthy people have strokes. I never smoked or drank alcohol. I played weekly sports until 83 years of age.” —Narelle Huett (on behalf of her father)

healthy

10. “After nearly four years… [it] still takes a lot longer to do things.” —Jen Jay

11. “Strokes do not discriminate. Any age/gender/nationality/fitness. It can happen to anyone.” —Linda Steuer

discrim

12. “Living alone after stroke is more lonely than loneliness.” — El JustEl

13. “Never give up hope! I was told I would never walk again. My left side was paralyzed, now look at me!” —Ariadne

hope

Best Ever Celiac Disease Treatment That Save My Life

The only treatment is a gluten-free diet. Celiac disease patients vary in their tolerance of gluten — some patients can ingest small amounts of gluten without developing symptoms, while others experience massive diarrhea with only minute amounts of gluten. The standard treatment calls for complete avoidance of gluten for life. The principles of a gluten-free diet include:

  1. Avoid all foods made from wheat, rye, and barley. Examples are breads, cereals, pasta, crackers, cakes, pies, cookies, and gravies.
  2. Avoid oats. Some patients with celiac disease can tolerate oats in the diet. But long-term safety of oats in celiac disease patients is unknown, and some oat preparations can be contaminated with wheat. Thus, it is probably best to avoid oats at least during the initial treatment with a gluten-free diet. Once the disease is in remission with a strict gluten-free diet, it may be possible to reintroduce small quantities of oats into the diet under medical supervision.
  3. Pay attention to processed foods that may contain gluten. Wheat flour is a common ingredient in many processed foods. Examples of foods that may contain gluten include:
  • Canned soups
  • Salad dressings
  • Ice cream
  • Candy bars
  • Instant coffee
  • Luncheon meats and processed or canned meats
  • Ketchup and mustard
  • Yogurt
  • Pasta
  1. Beware of tablets, capsules, and vitamin preparations that contain gluten. Wheat starch is commonly employed as a binding agent in tablets and capsules. Gluten also can be found in many vitamin products, and cosmetic products such as lipstick.
  2. Avoid beer, but wine, brandy, whiskey, and other alcohols without barley are fine in moderation
  3. Avoid milk and other dairy products that contain lactose. Untreated patients with celiac disease often are lactose intolerant. With successful treatment, dairy products can often be reintroduced slowly into the diet later.
  4. Consult dietitians and national celiac disease societies for lists of gluten-free foods. Read the food and product labels before buying or consuming any product. This is necessary, because a manufacturer may change a product’s ingredients at any time. A product that was gluten-free in the past may now contain gluten. Even branded products may be gluten-free in one country but contain gluten in another country. If one is not certain after reading the labels, call the manufacturer.
  5. Because people with celiac disease who have severe malabsorption can develop vitamin and mineral deficiencies, vitamin and mineralsupplements are important. Ask your doctor if a multivitamin is right for you. Patients with iron deficiency anemia should be treated with iron. Patients with anemia due to folate or B12 deficiency should be treated with folic acid and B12. Patients with an abnormal ProTime should be treated with vitamin K. Patients with low blood calciumlevels or with osteoporosis should be treated with calcium andvitamin D supplements.
  6. Following a gluten-free diet should result in improvements in symptoms within weeks. Many patients report symptom improvements within 48 hours. In children with celiac disease, the response to a gluten-free diet can be dramatic. Not only will diarrheaand abdominal discomfort subside, but behavior also improves, and growth resumes (with rapid catch up in height). These improvements in symptoms are followed by reappearance of intestinal villi, finger-like surface projections in the small intestine that are damaged by gluten.

    Complete normalization of the intestinal villi may take months. In many adult patients, the improvement in symptoms is followed by only partial regeneration of intestinal villi. In patients with dermatitis herpetiformis, the skin lesions also will gradually improve with a gluten-free diet. Often a medication called dapsone may be used for a short time to speed up healing.

    Many patients with celiac disease may not understand the importance of life-long adherence to a gluten-free diet. Many of those affected do not follow the diet closely. People who are poor and undereducated are most likely to have trouble following the diet, as are people who were diagnosed when they were children.

19 Things Only People With Celiac Disease Will Understand

1. Seeing “Gluten Free but not safe for Celiacs.”

Yeah Dominos, I’m talking about you.

2. Friends offering you foods with gluten.

“You can eat potato bread right? Cause it’s made with potatoes!”

3. Feeling excited when your favorite restaurant now has a gluten free menu…

19 Things Only People With Celiac Disease Will Understand
Universal Pictures / Via gif-database.tumblr.com

4. …but even though your waiter acted like they knew all about cross-contamination…

Act III Communications / Via flossingwhiledrunk.tumblr.com

5. …you end up getting gluten-ed.

Universal Pictures / Via giphy.com

6. Becoming a really amazing chef.

Or at least trying to.

7. Finding that perfect gluten free recipe or product.

Gluten Free Deep Fried Oreo?! Say what!

8. Having to be that person who refuses to share.

Do you realize how much this food costs?!

9. Paying tons of money for tiny pieces of bread with giant holes in them.

Paying tons of money for tiny pieces of bread with giant holes in them.

10. Having to explain exactly why you can’t eat gluten.

Marvel Studios / Via gif-database.tumblr.com

“I mean like it’s not an allergy, or an intolerance, it’s like a disease. No, you can’t catch it from me.”

11. Hearing all the “miraculous” stories of the fad dieters who lost weight on the gluten free diet.

Paramount Pictures / Via collegecandy.com

12. Knowing more about your gut than you ever thought you would.

Do you even know what villi are?

13. And yet people feel the need to tell you that Celiac isn’t real.

Disney / Via cinemablend.com

14. Dealing with roommates and family members that just don’t get it.

Disney / Via pandawhale.com

Get your hands off of my toaster. NOW.

15. The achy, hungry pain in your stomach when you forgot to pack your gluten free lunch

16. Hating everything when a food commercial comes on.

Look at these fluffy fluffy pancakes. You know you want someeeee.

Fox / Via giphy.com

17. But then remembering all the naturally gluten free foods that are a million times healthier.

18. “I would die before I gave up (insert gluten item here). You’re so strong!”

Cartoon Network / Via randomanimatioshotblog.tumblr.com
Universal Pictures / Via hikaguy.tumblr.com

19. Despite everything, finding an amazing and supportive Celiac community.

Disney / Via giphy.com

Alone, having Celiac can be pretty hard, but together we can get through it!

The mother who struggles to cuddle her children because rare condition means her joints ‘pop out’ up to five times a day (and she’s even dislocated her shoulder changing a nappy)

 

  • Emily Comber has Ehlers-Danlos syndrome – collagen in her body is weak
  • She is in constant pain and her joints dislocate very easily
  • Was diagnosed when she was pregnant because she was in so much pain she was bedbound for three weeks and her baby had to be delivered early
  • She says her family and para-dressage keep her sane through the pain

A mother has been left devastated by a rare condition that leaves her barely able to cuddle her children.

Emily Comber, 31, suffers from a rare syndrome that causes her constant pain and makes her joints ‘pop out’ up to five times a day.

It means she can barely pick up her one-year-old son Reuben and has even dislocated her shoulder changing a nappy.

Emily Comber (pictured with her husband, James) has Ehlers-Danlos syndrome which means the collagen in her body is weak so her joints dislocate easily and she is in constant pain

Emily Comber (pictured with her husband, James) has Ehlers-Danlos syndrome which means the collagen in her body is weak so her joints dislocate easily and she is in constant pain

Mrs Comber suffers from Ehlers-Danlos syndrome – a genetic condition which means the collagen in her body is too weak to hold her limbs in place.

The mother-of-two from Bude, Cornwall, said: ‘My ribs have popped out when I’ve been picking Reuben up out of his cot and I’ve even dislocated my wrist and thumb when changing his nappy.

‘My ribs go multiple times a day – it can be something small that sets them off like just shutting a car door.

‘It leaves me in so much pain, it’s like popping the lid on a jar, but now I’ve learned to deal with it better. It was much worse when I was younger and they didn’t know what was happening.

‘On my worst days it hurts just to breathe.’

Mrs Comber suffers from type three Ehlers-Danlos syndrome, which means she suffers from joint hypermobility and has long arms and legs.

Mrs Comber's joints 'pop out' up to five times a day and she has dislocated her shoulder, wrist and thumb changing her son's nappy. She is pictured with her children, Ruben, one, and Finlay, three

Mrs Comber’s joints ‘pop out’ up to five times a day and she has dislocated her shoulder, wrist and thumb changing her son’s nappy. She is pictured with her children, Ruben, one, and Finlay, three

She has suffered from the condition since she was a child, but it is notoriously difficult to diagnose.

It was only when she became pregnant with her first child, Finlay, now three, that she was diagnosed.

Mrs Comber said: ‘I was in agony. I couldn’t walk. I got referred to a specialist and they were sure I had it as soon as I entered the office.

‘The situation was so bad I was bedbound for three weeks and they only rolled me once every 24 hours, but otherwise couldn’t move me until after the C-section.

‘I gave birth eight weeks early. They just had to get the baby out of me.’

Mrs Comber was diagnosed when she was pregnant with her first child, Finlay. During the pregnancy she was in so much pain she considered not having any more children but eventually decided to have Ruben (pictured)

She added: ‘It’s a 50 per cent chance of passing it on to your children. We won’t know for sure until they get older, but Finlay is already showing symptoms.

‘It does worry me. I feel guilty. If either of them have got it then it’s come from me.’

Mrs Comber and her husband James, a builder, thought long and hard before having their second child after the strain it put on Mrs Comber’s body first time around.

She said: ‘It did put us off having another child, but we planned everything the second time. We had a lot of special help.

‘We had Reuben four weeks early as a planned thing. We both knew what was happening at every stage of the pregnancy.’

Mrs Comber said: 'It leaves me in so much pain, it's like popping the lid on a jar, but now I've learned to deal with it better. It was much worse when I was younger and they didn't know what was happening'

Mrs Comber said: ‘It leaves me in so much pain, it’s like popping the lid on a jar, but now I’ve learned to deal with it better. It was much worse when I was younger and they didn’t know what was happening’

But since Reuben has been born the condition has presented itself in different ways and even picking the baby up out of his bed can leave her in agony.

She now has a carer who helps her for 14 hours a week.

She has also taken up dressage for people with disabilities and managed to walk down the aisle without her crutches.

She said: ‘Originally I wanted to go away and get married somewhere where no-one could see us, but it was actually really nice.

‘I had to lean on my dad to get down the aisle and we sat for a lot of the service.

Mrs Comber was so ill when she was pregnant with Finlay that she was bedbound for three weeks and he had to be delivered eight weeks early

Mrs Comber was so ill when she was pregnant with Finlay that she was bedbound for three weeks and he had to be delivered eight weeks early. He is pictured shortly after his birth

‘James carried me for a lot of the day, but we were on the beach in the middle of a heat wave so it just looked normal.

‘It took me a week to recover. I’ve taken up para-dressage riding and it really helps. Along with my family it helps keep me sane. I think I would otherwise lose the plot with the high levels of pain.’

British actress Cherylee Housten, who plays Izzy Armstrong in Coronation Street, also suffers from EDS and is the ambassador for the charity Ehlers-Danlos Support UK.

Lara Bloom, manager of the charity, said: ‘The condition affects the connective tissue in the body. It can cause problems with joints and internal organs.

‘The vascular form of the disease can also shorten life expectancy.’

WHAT IS EHLERS-DANLOS SYNDROME?

Ehlers-Danlos syndrome is a group of inherited conditions that affect collagen proteins in the body causing them to be weak.

Typical features are stretchy skin, loose joints and fragile body tissues.

Collagen is a building block that strengthens and supports various body tissues – it is found in tendons, ligaments, cartilage, skin, bone, blood vessels and the spine.

EDS is caused by alterations in certain genes – these can be passed from parents to their children.

The condition affects at least one person in every 5,000 in the UK.

There are various different forms of EDS. All share some common features, such as loose joints, abnormal skin and fragile body tissues, but each form of EDS has unique characteristics too.

The most severe form is Vascular EDS which causes the organs and blood vessels to be at risk of rupturing – this can be fatal.

The life expectancy for people with Vascular EDS is in the 40s.

source

 

Scientists Move Closer to Understanding Schizophrenia’s Cause

Scientists reported on Wednesday that they had taken a significant step toward understanding the cause of schizophrenia, in a landmark study that provides the first rigorously tested insight into the biology behind any common psychiatric disorder.

More than two million Americans have a diagnosis of schizophrenia, which is characterized by delusional thinking and hallucinations. The drugs available to treat it blunt some of its symptoms but do not touch the underlying cause.

The finding, published in the journal Nature, will not lead to new treatments soon, experts said, nor to widely available testing for individual risk. But the results provide researchers with their first biological handle on an ancient disorder whose cause has confounded modern science for generations. The finding also helps explain some other mysteries, including why the disorder often begins in adolescence or young adulthood.

“They did a phenomenal job,” said David B. Goldstein, a professor ofgenetics at Columbia University who has been critical of previous large-scale projects focused on the genetics of psychiatric disorders. “This paper gives us a foothold, something we can work on, and that’s what we’ve been looking for now, for a long, long time.”

The researchers pieced together the steps by which genes can increase a person’s risk of developing schizophrenia. That risk, they found, is tied to a natural process called synaptic pruning, in which the brain sheds weak or redundant connections between neurons as it matures. During adolescenceand early adulthood, this activity takes place primarily in the section of the brain where thinking and planning skills are centered, known as the prefrontal cortex. People who carry genes that accelerate or intensify that pruning are at higher risk of developing schizophrenia than those who do not, the new study suggests.

Some researchers had suspected that the pruning must somehow go awry in people with schizophrenia, because previous studies showed that their prefrontal areas tended to have a diminished number of neural connections, compared with those of unaffected people. The new paper not only strongly supports that this is the case, but also describes how the pruning probably goes wrong and why, and identifies the genes responsible: People with schizophrenia have a gene variant that apparently facilitates aggressive “tagging” of connections for pruning, in effect accelerating the process.

Photo

Steven McCarroll, an associate professor of genetics at Harvard, and Beth Stevens, an assistant professor of neurology at Boston Children’s Hospital and Harvard. The results of their study have provided researchers with their first biological handle on schizophrenia. CreditKayana Szymczak for The New York Times

Some scientists warned that the history of biological psychiatry stands as a caution against premature optimism. “This work is extremely persuasive,” said Dr. Samuel Barondes, a professor of psychiatry at the University of California, San Francisco, “but any step forward is not only rare and unusual, it’s just one step in a journey of a thousand miles” to improved treatments.

The study, by scientists from Harvard Medical School, Boston Children’s Hospital and the Broad Institute, a research center allied with Harvard and the Massachusetts Institute of Technology, provides a showcase of biomedical investigation at its highest level. The research team began by focusing on a location on the human genome, the MHC, which was most strongly associated with schizophrenia in previous genetic studies. On a bar graph — called a Manhattan plot because it looks like a cluster of skyscrapers — the MHC looms highest.

“The MHC is the Freedom Tower” of the Manhattan plot, said Eric S. Lander, the director of the Broad Institute. “The question was, what’s in there?”

The area is a notoriously dark warren in the genome known to contain genes that facilitate the body’s immune response, for example, by flagging invading bacteria to be destroyed. That property had given rise to speculation that schizophrenia might be a kind of autoimmune condition, in which the body attacked its own cells.

But the research team, led by Steven McCarroll, an associate professor of genetics at Harvard, and by Aswin Sekar, one of his graduate students, found something different. Using advanced statistical methods, the team found that the MHC locus contained four common variants of a gene called C4, and that those variants produced two kinds of proteins, C4-A and C4-B.

The team analyzed the genomes of more than 64,000 people and found that people with schizophrenia were more likely to have the overactive forms of C4-A than control subjects. “C4-A seemed to be the gene driving risk for schizophrenia,” Dr. McCarroll said, “but we had to be sure.”

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A series profiling people who are functioning normally despite severe mental illness and have chosen to speak out about their struggles.

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The researchers turned to Beth Stevens, an assistant professor of neurology at Boston Children’s Hospital and Harvard, who was an author of a 2007 study showing that the products of MHC genes were involved in synaptic pruning in normal developing brains. But how important was this C4 protein, exactly? Very important, it turned out: Mice bred without the genes that produce C4 showed clear signs that their synaptic pruning had gone awry, Dr. Stevens’s lab found.

Taken together, Dr. Stevens said in an interview, “the evidence strongly suggested that too much C4-A leads to inappropriate pruning during this critical phase of development.”

In particular, the authors concluded, too much C4-A could mean too much pruning — which would explain not only the thinner prefrontal layers in schizophrenia, but also the reason that the disorder most often shows itself in people’s teenage years or early twenties. “The finding connects all these dots, all these disconnected observations about schizophrenia, and makes them make sense,” Dr. McCarroll said.

Carrying a gene variant that facilitates aggressive pruning is hardly enough to cause schizophrenia; far too many other factors are at work. Having such a variant, Dr. McCarroll estimates, would increase a person’s risk by about 25 percent over the 1 percent base rate of schizophrenia — that is, to 1.25 percent. That is not nearly enough to justify testing in the general population, even if further research confirms the new findings and clarifies the roles of other associated genes.

Yet the equation changes when it comes to young people who are at very high risk of developing the disorder, because they are showing early signs — a sudden slippage in mental acuity and memory, or even internal “voices” that seem oddly real. This ominous period may last a year or more, and often does not lead to full-blown schizophrenia. The researchers hope that the at-risk genetic profile, once it has been fleshed out more completely, will lead to the discovery of biomarkers that could help clarify a prognosis in these people.

Developing a drug to slow or modulate pruning poses another kind of challenge. If the new study shows anything, it is that synaptic pruning is a delicate, exquisitely timed process, and that it is still poorly understood. The team does not yet know, for example, why C4-A leads to a different rate or kind of pruning than C4-B. Any medication that tampered with that system would be a risky proposition, the authors and outside experts agreed.

“We’re all very excited and proud of this work,” Dr. Lander said. “But I’m not ready to call it a victory until we have something that can help patients.”

10 Things I Wish People Knew About Living With Celiac Disease

Imagine growing up constantly feeling sick and not knowing why. Feeling queasy every morning and not knowing why. Having a foggy head and complete inability to focus and not knowing why. Being told you have 20/20 vision but blurry eyes and not knowing why. Going from being “too skinny” to “too large” too quickly and not knowing why. Having to miss school and being mocked for it but not knowing why. Being told “you’re faking it” or “that isn’t happening” and not knowing why. Having teachers tell you they don’t believe you because there’s no diagnosis and not knowing why.

Why? Why was this this first 18 years of my life? Why did I have so many seemingly unconnected symptoms? Why did it take so long to diagnose?

Because of I have celiac disease, that’s why.

What is celiac? According to the Celiac Disease Foundation, “Celiac disease is an autoimmune disorder that can occur in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine. It is estimated to affect 1 in 100 people worldwide. Two and one-half million Americans are undiagnosed and are at risk for longterm health complications.”

There are about 300 known symptoms of celiac disease, making it incredibly difficult to diagnose. I was misdiagnosed as anemic and having chronic fatigue and lactose intolerance.

Once the diagnosis came in, I felt a wave of relief. “Eating gluten-free can’t be that hard,” I thought. While it’s not actually that difficult, there were some life changes I hadn’t expected. There are a lot of misconceptions about celiac disease and gluten-free eating. And there are a few things I wish people knew…

1. A lot of people think it’s their place to comment and ask presumptive questions. It isn’t.

“Is it like celiac or is it, like, a fad thing?” “Are you just trying to lose weight?” “That’s such a stupid fad.” Eating gluten-free is not a choice for me. And while you may think you’re being funny, it’s really none of your business why I have to do this.

2. No, I can’t just “eat a little.” It will end really poorly.

3. Yes, cross-contamination really will make me sick.

4. I actually hate talking about it. Especially with restaurant staff. But I have to, or I’ll get sick.

5. If I do somehow get “glutened,” I can’t put thoughts together, I have no appetite, I feel queasy all the time, my muscles feel weak and all my brain and body want me to do is sleep.

But everyone’s symptoms vary, so you may have no idea someone you know got glutened, or they may throw up all over you.

6. When I’m “glutened,” it can take months for me to recover. I have to change my diet, sleeping habits and active lifestyle to try to get back to normal as fast as possible.

7. Jokes and off-hand comments put me on the defensive and make me feel like I have to justify this really hard part of my life to you.

8. Celiac can ultimately cause malnutrition, which can ultimately cause death. So it’s really not a funny thing to joke about.

9. Basically, celiac is actually a serious autoimmune disorder. And I want people to know that.

10. But it’s one small part of my life. It doesn’t define me. And I’m so much more than my disease.

Woman Successfully Treats Stage 4 Kidney Cancer And Celiac Disease With Cannabis Oil

In August 2014, Linda Morado received the most devastating news of her life — a diagnosis of stage IV kidney cancer. It had metastasized to her lungs in two places. The month prior, Linda had also been diagnosed with celiac disease and nutrient malabsorption issues. Despite these overwhelming challenges, Linda was determined to live.

With eight years of experience in the United States Army, she intimately understands the value of a fighting spirit. She also has a large family to take care of, including five children, fifteen grandchildren, and two great grandchildren. Thankfully, through the power of cannabis extract medicine and unwavering spiritual belief, Linda is now cancer free.

Linda was given 10 months to live by her doctors. She underwent a surgery in an effort to extend her life, which included removal of her right adrenal gland and drainage of fluid in her right lung. After working through a number of emotions, Linda decided to use cannabis extract therapy.

The first oil she acquired was weak, which she discovered after four weeks of ineffectiveness led her to have a lab test conducted on it. It tested at 46 percent tetrahydrocannabinol (THC). The next batch was far stronger, testing at 85 percent THC, and caused her to sleep for most of the initial four or five days of treatment. Within a couple months, Linda’s energy and weight substantially improved, indicating the oil had positively impacted her celiac condition.

Via: illegallyhealed.com

Photo: Linda Morado before and after treating herself with cannabis oil. Via: illegallyhealed.com.

A December 18, 2014 oncologist appointment revealed the lung cancer had disappeared, which surprised the doctor. He told Linda to continue doing what she was doing. By January, the cancer was completely gone.

There are strong scientific studies behind all this. A study published in the Journal Molecular Cancer determined that cannabinoids may inhibit cancer cell proliferation and induce cancer cell apoptosis. Basically, the cancer cells commit suicide!

Thanks to the natural healing path Linda took, she can now continue supporting her family. She announced her recovery on a January 15, 2015 Facebook post:

“I AM CANCER FREE!!! Stage 4 cancer and given a death sentence to cancer free in just a couple months!!!!! Hip Hip HORRAYYYYYYY.” — Linda Morado

It is a tragedy that lab-tested cannabis extracts are not more readily available — if they had been, Linda could have avoided the initial setback she experienced. As stories like hers become better known, the demand for safe access will become overwhelming and eventually result in reform.

31 Random Facts About Ehlers-Danlos Syndrome- Term life

31 random facts about Ehlers-Danlos Syndrome (prounounced AY-lerz DAN-lowz), also known as EDS. It is a group of genetic disorders that are actually NOT rare – only rare to be properly diagnosed by a doctor who is knowledgeable about EDS. Every person has a different set of common symptoms, no 2 are exactly alike, because it is caused by faulty collagen – the glue that holds our bodies together. Spreading awareness is the key to helping more people get properly diagnosed.

1. Inherited genetic disorders

Inherited genetic disorders

Because each EDSer is different, members of the same family can have greatly varying symptoms. One may live a relatively healthy life with almost no symptoms, while their family member uses a wheelchair and feeding tube.

2. There’s no such thing as “double-jointed”.

There's no such thing as "double-jointed".

Hypermobile joints cause chronic, painful dislocations and subluxations. As we age into our 20s and 30s, this can also cause arthritis, and we become more stiff and less flexible.

3. Connecting the dots…

Connecting the dots...

Until someone learns about EDS, it can be hard for them to connect the dots between their migraines, digestive problems, blood pressure, back pain, and heart problems all being about connective tissue.

4. Born this way.

Born this way.

*worst

5. Pain from 0 to 10 in .5 seconds.

Pain from 0 to 10 in .5 seconds.

Expending energy, just moving the wrong way, or sometimes even the weather can sometimes leave us in days of pain. Please keep inviting us, because we will go when we can! We want to!

6. Handle With Care

Handle With Care

This is especially true with Vascular Ehlers-Danlos Syndrome, also known as VEDS.

7. Inflammation sucks.

Inflammation sucks.

Actual heart attacks are more likely with VEDS.

8. EDS and Insomnia

EDS and Insomnia

These adrenaline issues are also why we are more prone to anxiety and panic attacks. We are also often up with painsomnia – when we are in too much pain to sleep.

9. POTS

POTS

Postural Orthostatic Tachycardia Syndrome, also known as POTS, is very common for those of us with EDS. We often have blood pressure that is too high or too low, and can have dizzy fainting-like spells. Showers and hot tubs can be dangerous for us.

10. Velvety soft skin.

Velvety soft skin.

Often described as having the skin of a newborn and joints of an 80 year old.

11. Neck pain.

Neck pain.

Having a gentle massage therapist who is knowledgeable about EDS can be crucial. Just another reason we need to spread awareness!

12. EDS and Pregnancy

EDS and Pregnancy

Younger women with EDS tend to have less problems with pregnancy, but there is still a 50% risk that the child will have EDS, as well. It is a very personal and difficult choice to make, especially in the late 20s and older.

13. Vascular Ehlers-Danlos Syndrome (VEDS) kills.

Vascular Ehlers-Danlos Syndrome (VEDS) kills.

Find out more information about VEDS from the Ehlers-Danlos National Foundation http://ednf.org/vascular-veds-emergency-information

14. Genetics

Genetics

There are several different types of EDS, and there can be different types within the same family through mutation. But the symptoms can vary so widely from person to person, that genetic testing is the best way to know for sure.

15. Center for Clinical Care & Research (FINALLY!)

Center for Clinical Care & Research (FINALLY!)

Ehlers-Danlos National Foundation has partnered with the Greater Baltimore Medical Center (GBMC) to establish the EDNF Center for Clinical Care & Research at GBMC’s Harvey Institute for Human Genetics. Open August 2014.

16. EDS & Anesthetics

EDS & Anesthetics

We can have low absorption of many things – pain killers, vitamins and minerals, and yes – anesthetics.

17.

Also to stretch our bodies.

18. Forgot what I was saying…

Forgot what I was saying...

It’s on the tip of my tongue! Why am I suddenly so tired and can’t remember anything? Argh.

19. Chronic Fatigue

Chronic Fatigue

Chronic Fatigue Syndrome, also known as CFS, affects people will all sorts of chronic illness. Those of us with chronic fatigue are also known as #Spoonies. See Christine Miserandino’s Spoon Theory for more info on that! http://www.butyoudontlooksick.com/wpress/category/the-spoon-theory/

20. Fingers that sometimes won’t fing.

Fingers that sometimes won't fing.

21. Why the Zebra?

Why the Zebra?

22. TMJ can be worse than TMI.

TMJ can be worse than TMI.

Brushing teeth can suck when your jaw gets stuck.

23. Invisible Illness (for some)

Invisible Illness (for some)

We may not need any assistance one day, and a wheelchair the next, and then just a cane the day after that. Cleaning the house can mean having to rest in bed for a week. Again, see: The Spoon Theory http://www.butyoudontlooksick.com/wpress/category/the-spoon-theory/

24. Digestive problems… gut instinct.

Digestive problems... gut instinct.

25. Changes

Changes

We never know when or where we will be in sudden excruciating pain.

26. Testing, testing, 1 2 3…

Testing, testing, 1 2 3...

This is why raising awareness of common symptoms of Ehlers-Danlos Syndrome is SO important. You don’t know whose life you could change for the better, just by helping them find answers.

27. EDS and Chiari Malformation

EDS and Chiari Malformation

Chiari is yet another congenital condition (meaning you’re born with it) that can be common in those with EDS.

28. Slipping ribs hurt.

Slipping ribs hurt.

Can be caused from the way a bra pushes against a rib, cuddling, coughing, hormones, stress, weather, sitting in a particular position for an extended period of time, driving, etc.

29. Compensating & problem solving:

Compensating & problem solving:

*witty

30. You can help!

You can help!

Care. Share.

31. What doesn’t kill us makes us stronger.

What doesn't kill us makes us stronger.